Hi im Simon 57 , diagnosed with stage VIA prostate cancer in July (T4 N1 M0 Gleason 4+5 (9) grade 5) Triple treatment + radiotherapy .
been doing the cancer thing on my own , been tough sometimes, its taken 19 - 20 weeks for my first chemo, I have my second now tomorrow on 24th December.
been very disappointed in the whole care thing for the start , I don't have a GP I can confide in when they can't follow simple request. iv'e been poorly informed along this road , ive pretty much had to find all the information myself , there is not a lot of information about my cancer so took awhile, I'm thinking of giving up treatment and just having palliative care with the darolutamide (NUBQA). im not the best patient , I don't suffer bul**hit or boll***s, I have my 3rd chemo on the 14th jan with an oncologist appointment , and I decided that day. its taking up to much of the valuable time I have left and the quality of life its giving me at the moment .and the reality of it is its your fight , you decide to fight or just die , not them. stay strong , keep fighting and make good memories .
Hello simon IVA
A warm welcome to the Macmillan Online Community and I am so sorry to find you here in those circumstances.
I am Brian one of the Community Champions on the online Community and I have Prostate Cancer and hang out mainly on our Prostate Group. To connect with our little group and to share your thoughts and experiences with us can I suggest you join us by clicking this link:
Once the page opens up just click on "join" on the black banner at the bottom of the page. Once you have joined us you can either copy and paste or repost this post in the "New Here - Say Hello" section. You won't get any Bul**hit or Boll**s from us - just honest help and conversation.
I look forward to "meeting" you again on our group for a very interesting conversation.
Best wishes - Brian.
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