Sons tumor

Hi Mum38 and a warm welcome to the Macmillan Community but so sorry to hear about your son

A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer or cancer support challenges can help a lot.

Your son will indeed be more open to….

infection's

……. during treatment so a small cold for a healthy person could develop to be a problem with your son. So care needs to be taken around people with colds and runny noses.

This New to Community area is like our reception desk where we try to direct you to the best part of the Community for you to get support.

The Community is actually divided into dedicated Support Groups (Discussion Rooms)……… but you don’t say what type of cancer your son has…….. but if you care to have a look through THIS LIST you will find all our dedicated cancer support groups listed…… it’s so important to get the right group as not all cancers react in the same way.

These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same journey.

Have a look through the LIST above and once you find the support group for your………. cancer type....... click on the link and when the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

As for the practical and emotional challenges of supporting your son and indeed yourself you may benefit from joining and posting in our……..

  Carers only

……support group where you will connect with others navigating the same support challenges.

It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.

The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

Do get back to me if you need further help navigating the community.

Thank u for replying  my son has a benign tumor radiating from his brain stem down his cerebellum they could only take a small amout due to it being mixed through his nerves and on his spinal cord so was put on dab + tram to stop it frow growing any further for as long as the treatment works. Other than fatigue towards end of the day (7pm ish) he’s had no other side affects from the treatment all his weekly blood test have also been fine so far and his oncologist has said he can continue school, but with all the different information that come our way we didn’t think to ask about something as simple as my first question. 
thank u 

P. S totally new to us as it is with many and don’t want to mess his treatment up

Hi again Mum38 it is a challenging journey to navigate.

I see you have now joined our Carers only support group…. This is a good place to connect with other caregivers 

You may also want to have a look at our Brain tumours support group.

Do remember that our support line is open every day if the week so if you have any questions and need quick support give the line a call.

((hugs))

Thank u

You may also want to look at our Parents of children with cancer support group as well.... although it has not been busy this past month.... which in itself is good ((hugs))