Hello

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Hi everyone, just found this forum so I thought I’d share my journey so far. Back in January this year I saw my GP with blood in my urine this led to rapid access to Urology and being investigated for possible bladder cancer. Cystoscopy was clear and escaping kidney stones ruled out but the blood was still in evidence. My request for an MRI was at first met with some resistance but eventually agreed to. I waited some 6 weeks for this as the Urologist viewed this as pandering to my concerns however, this was when the radiographer saw something which warranted further investigation. Within a week I was invited back into clinic to confirm that they had indeed seen a mass in my prostate which may or may not be cancer. A biopsy was arranged for that week and a week later I was told that it was indeed a malignant tumour with a Gleason score of 9 (5,4). A bone scan and Pet scan quickly followed the outcome of which showed that the tumour was contained within the prostate. In the blurry discussion that followed I remember them saying my only option was surgery and chemotherapy and a provisional date was arranged. At this point I hadn’t yet spoken to an Oncologist so therefore felt I hadn’t been given an opportunity to discuss treatment options. At this juncture it’s only right that I tell you I had BUPA in my locker so I spoke to them for advice as to how to proceed. Long story short, I decided to activate my insurance and chose my Oncologist and regional centre to begin my journey proper. I saw my Oncologist within a week and after a 90 minute consultation which included a comprehensive lifestyle assessment I started hormone therapy with radical radiotherapy the same day. I’m on Abiraterone daily for 2 years and Zoladex injections every 3 months for the same period. At the time of writing I have just completed my radiotherapy. 
6 months in I am suffering with fatigue which seem to be most common amongst others on this forum. I’m coping well with the Abiraterone but the Zoladex wipes me out for a good 36 hours and I’m just wondering if i will ever get back to my active lifestyle where I’m walking the dogs upto 6 miles a day and playing golf when the weather improves or do I need to start adapting. Any advice will be appreciated Sunglasses

  • Hello  

    A warm welcome to the Macmillan online Community - I am so sorry to find you here.

    I am Brian one of the Community Champions and I hang around on the Prostate Forum (I am also a member of the Gleason 9 club Grin)  At the moment your post is in the "New to the Community" section and will not be seen by most fellow Prostate Cancer sufferers.

    I notice you have joined our Prostate group but have not posted there. Would you like to either copy and paste or repost this post in the Prostate group or would you like me to have it moved there? You will get lots of answers there are we have a great group.

    I look forward to hearing from you regarding the above.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Bryan, I’m not good with computers so if you want to copy/paste this into a more appropriate forum that would be very much appreciated. 

  • Hello  

    Leave it with me - I will get it moved to our little group.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.