My husband was diagnosed with this rare cancer after finding a lump in his stomach. He had an operation to remove the lump ( sarcoma) but the cancer was spread in his abdomen and the operation was just an open and close. He was given 18 months -2 years and was told chemotherapy wouldn’t be effective. Since then he’s remained quite well but did experience pain and abdo bleeding so had some palliative chemo to help his symptoms. He’s a total legend ; so uncomplaining despite pain and discomfort. He’s ‘sorted’ everything for me and my sons so we don’t have to worry. I am devastated that his palliative chemo has now stopped and worry that time is slipping away. I haven’t talked to anyone who has this awful cancer . Is there anyone out there who has the same. I don’t know what to expect . I just try to keep as cheerful as possible for his sake whilst I’m quaking inside. Sorry to impose my burden on you but I need a listening ear.
thank you
Hi Jmd25 and a warm welcome to the Macmillan Community but so sorry to hear about your husbands diagnosis.
A cancer diagnosis in the family like this can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help you a lot……. I have an incurable cancer but a completely different type.
This New to Community area is like our reception desk where we try to direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) and when it comes to the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from joining and posting in our……
Supporting someone with incurable cancer
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
I did a Community search using the search tool 
near the top and only found a few hits on Dedifferentiated Liposarcoma but both are a few years old.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow 3 working days for a reply.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community ((hugs))
Glad that you have found my post helpful.
One of the hits was actually in the Carers only support group....
((hugs))
