Bamboozled by the big C

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Hi everyone 

Since getting that first phonecall on 2nd Oct 24 saying that I was being recalled after my routine mammogram, I’ve been a bit bamboozled by the terminology and decisions to be made.

I've had 2 x ultrasounds, extra mammograms, about 12 biopsies including lymph nodes. 

At first I was told I just had DCIS, which then advanced to Stage 2, high grade DCIS and a further piece of invasive cancer that has affected a least 1 lymph.

Tomorrow I’m back in hospital to get a lymph seed implant so my surgeon can identify the correct lymph node to remove. They also be injecting some dye for the same reason.

Ive opted for a full mastectomy of my left breast & lymph node removal - I don’t know how many yet. I will be getting an implant reconstruction at the same time and my original nipple ‘stamped’ on the closed site. I didn’t realise this was a thing! this will all be happening on 6th Dec. So wish me luck! Four leaf clover 

Hi to all you other brave warriors just starting out on your journeys. It’s scary and the unknown is tough. I’ve been very up and down emotionally but I’m trying to stay positive.

  • Hi  and a very warm welcome to the Macmillan Community but sorry to hear about your diagnosis. 

    Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot. (I have a completely different cancer).

    This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated Breast Cancer Support Group.

    This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link below…….

             Breast cancer

    ……. and once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

    You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

    Do get back to me if you need further help navigating the community ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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