Hello I am new to the group,
It's been a bit of a whirlwind and I suppose most people in the beginning feel like they've been hit with a sledge hammer
I originally went to the GPS as I thought like my mum I had angina as ive noticed I had a small burning feeling in my chest when going up hill,stairs etc. Referred to the cardio dept who then did a CT scan and noticed a lesion on the RLL. Fast forward 3 weeks later referral to respiratory and have had a echocardiogram, spirometry, further CT and CT/pet scan. The consultant then suggested a biopsy which I went for yesterday the radiologist said he was unable to do it as A the lump is too small B it's in a poor position to get a sample. The radiologist sat and had a discussion with me and seems to think it is a very small early cancer, no spread anywhere in the body and nothing showing on the pet scan,but I know it can show a false negative. He then said the MDT team will meet on Thursday and there will possibly be 3 options another attempted biopsy(which can't say I want to go through again as might be unsuccessful), a wait and see approach or treat the growth as cancer and have surgery to remove the growth but, then he said if the lump is benign then I've had surgery for nothing.
The only reason I'm thinking myself it could be cancer as the position of the growth is pressing on my lung when I breath in and out and, I think is the cause of the burning in my lung
Any help, views, information would be so helpful. Thank you
Hi Jaz_123 and a very warm welcome to the Macmillan Community but sorry to hear about your concerns.
Navigating a diagnostic journey can be such a stressful and challenging time.
I have been on my incurable cancer journey for over 25 years, it's not Lung Cancer but 2 rare types of blood cancer but over the years I have also had various Lung issues...... nothing of significant concern......... although one is Asbestosis that is stable and from time to time gives my aches and pains and some breathlessness.
Until you get this checked out correctly this is all a guess...... as I regularly talk with folks who have lung issues and this can be due to various types of different cancers.
This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Support Groups (Discussion Rooms)..... but as you don't have a clear diagnosis it's hard to direct you to a specific group....... but once you have that diagnosis have a look through THIS LIST you will find all our dedicated cancer support groups listed.
These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from members who are navigating the exact same journey.
Have a look through the LIST above and once you find the support group for your cancer type....... click on the link and when the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow 3 working days for a reply.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
