Advice, possible Sarcoma.

  • 2 replies
  • 33 subscribers
  • 66 views

Hi everyone,

Very new to this site and I'm here because I've scared myself silly by googling my symptoms - I'll bet I'm not on my own but self diagnosis while waiting for an ultrasound is too tempting.  I have a hard lump deep in my upper arm, that was checked out a few years ago and I was told it was nothing to worry about,  I can certainly feel the lump now its grown and my arm feels tender in that area along with a painful shoulder which I just put down to old age (young 55), I'm sure I can feel other small lumps along the muscle in my arm.  This lump is very hard and about the size of my thump nail. 

GP has requested numerous blood tests and I've got my appointment for an ultrasound - in 2 weeks.  I've checked my symptoms online and they all come back the same thing, it's a Soft tissue sarcoma.  I'm asking if other people on here have had similar symptoms and can offer me any advice, support etc.  The waiting is the hardest, I've even resorted to checking out ultrasound images online so I can take a peek when I have my ultrasound.  I'm very anxious as I had a malignant melanoma 7 years ago on my face, so anything vaguely lumpish and I instantly jump to the conclusion it's cancer.  Any advice or support would be a huge help.  Thank you and good health to you all xx

  • Hi  and a very warm welcome to the Macmillan Community but sorry to hear about your ongoing diagnosis. 

    Navigating a diagnostic journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot.

    I have been on my incurable blood cancer journey for over 25 years but I must say I have a few lumps just the same and are not an issue so let’s hope for the same for you,

    This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated Soft Tissue Sarcomas Support Group.

    This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link below…….

            Soft tissue sarcomas

    ……. and once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

    You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thank you for the advice x