Hi I'm 46 have lived with a urethral stricture for 40 years catheter myself daily this caused sucnificant trauma to bladder resulting to being diagnosed with grade 3 bladder cancer with siu in situe with was only treatable by removed bladder the prostate and created nerve damage this now left me with untreatable ED as any form treatment will create mass amount pain as still have urethral stricture and no longer being treated for this as I have no bladder so they have decided it doesn't justify treatment I underwent 9 hrs surgery for urethral plasti back July 23 to then be diagnosed in oct with cancer now live bag for rest my life aswell as urethral stricture ED and feel my life been taken apart with no information about any this affect after surgery its not just about intermacy it's about everything I been my partner 7 years we wanted another child I was blessed with our 6 year old just feel I have no place or purpose anymore I also have heart conditions blood pressure issues celestial issues neurology issues just don't see any way forward I wanted die dureing recovery now I wish I did or wish I had took my chances living with the cancer to be a working man for 23 years in well loved job and long time achievement to be taken away man hood be taken daily stuff like standing to have pee taken just to have shell body and no purpose just don't know anymore what way go has anyone experienced this
Hi Jas1978 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
It does sound like you've been through an incredibly difficult time so I can understand you wanting to find others who may have experienced the same.
As the online community is divided into different support groups I'm going to recommend that you join the bladder cancer group which is a great place to ask questions and share experiences with others who have had the same procedure as you.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
