Recent triple negative breast cancer diagnosis

Hi Kiwi79  and a very warm welcome to the Macmillan Community but sorry to hear about your diagnosis. 

Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot. (I have a completely different cancer).

This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support.

The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated Triple Negative Breast Cancer Support Group.

This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link below…….

         Triple negative breast cancer

……. and once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

You can copy and paste the text from this post into your new post.

The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

Do get back to me if you need further help navigating the community.

Thank you so much for all your help!

I will do that!

Hi there Kiwi79, 

I'm really sorry to hear your news!

Having been diagnosed with TNBC in September this year, I can relate to what you are going through.  

Like you I was very shocked as I am 54 and very fit and healthy.  Mine was detected by the doctor via a routine health check I get through my work!  We were both shocked!

I had other tests and thankfully it was not showing elsewhere in my body.  I was advised mine was Grade 3, rare and very aggressive and stage 1.  The consultant advised it was treatable and curable, so that was good to hear!

It was a very anxious time waiting for those results, however following a conversation with my consultants secretary who previously had breast cancer, she advised me to try and put it to the back of my mind and keep myself as busy as possible to wear myself out in order to sleep better at night.

I was adamant I wanted my life as normal, albeit everything went through my mind.  In the end I told myself to try and stop worrying as it was out of my control.  I named it Larry the Lump and was determined to continue with my life.

I had ran an Ultra Marathon in July and must have had it then without knowing, so I continued with my running, which I can honestly say was my saviour, even getting a PB's in a couple of distances!!

I had my operation on the 4th November and I'm now taking it easy at home combined with daily walks.

I have my follow up appointment on the 22nd, so fingers crossed for positive results.

I can honestly say the NHS have been absolutely fantastic.  They are extremely helpful and go out of their put your mind at ease.

No one knows what the future holds, however I like to keep a positive outlook.

I do hope this helps you, even in the slightest way.

Take care and sending my love  

Thank you for your message. It is very encouraging and I am glad you are feeling ok.

i am waiting the results of my scans to see if it has spread but i know it is already in lymph nodes in my armpit. One is quite large and causing some discomfort.

I also have some chest pain so I worry it has spread and felt very weak, hot and cold with GI signs the last 2 days so this is worrying me further though may not be related.

i have a follow up on 26th for results and plan. I am going private so hopefully they will move quickly.

i am so scared it is stage 4 and terminal 

Fingers crossed for your results and that it has not spread! 

Anxiety and stress can cause all kinds of symptoms.  

Take care of yourself xxx

Thank you!  

The anxiety and stress with the wait is awful!

im so scared 

Hi it's good to read such a positive post and glad your doing really well.  I too have Stage 1 Grade 3 TNBC diagnosed in Sept after finding a lump.  It's very daunting and made worse for me with a bad reaction to Paclitaxel last Friday for my first infusion.  Hence they had to stop as my blood pressure dropped suddenly.  I am waiting to hear what the plan is for this Fridays infusion.  Did you have any adverse reactions to your chemo drugs?  Stay well.

Hi there BAC52, 

Sorry to hear about your diagnosis, I agree these are daunting times! 

My treatment started on 4th November with a lumpectomy.  I have an appointment this Friday 22nd for the results and next steps in the process.

Fingers crossed  I get good results. I haven't had chemo,  therefore unable to advise, however following a conversation with my breast nurse it is possible it will be within the next stage of my treatment.

I do hope your chemo treatment improves and the side effects pass.

Stay strong and together we will continue to fight cancer!

Take care of yourself and good luck xx

Good morning Ginge02

Wishing you good luck for Friday and stay well.  I am still waiting to hear from my Oncologist as to the plan for this Fridays infusion fingers crossed I hear today xx