Hello breast cancer again.

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Hi there I’ve current joined the group and wanted to add my bit. 
it’s been a hell of a year I can tell you! So in 2002 at the age of 28 I got diagnosed with grade 2 hormone positive breast cancer in my right breast, I had a lumpectomy, which didn’t come back with clear margins so went on to have my chemotherapy, after that I had a full mastectomy with immediate reconstruction using my stomach muscle, which they swing up under my skin and sew making a new breast, also using the fat from my tummy ( a operation they no longer do) a very lengthy procedure, leaving me with a hip to hip scar, but great results, I spent 2 weeks in hospital, but recovered well. Was taking tamoxifen for 5 years after treatments. 

Lets go to this year, I was suffering with excruciating migraines, balance issues, dizziness, numbness in my right arm, visual problems, the list goes on, I was given neck MRI’s then later a head MRI, they discovered a brain tumour, which thankfully turned out to be a grade 1 meningioma (not cancerous) which I had a craniotomy to remove in June this year, they gave me a CAT scan as they knew I’d previously suffered from breast cancer and blow me, after 22 years it was discovered I had breast cancer again, and also in my lymph nodes. At the end of September I had another mastectomy with immediate reconstruction using a silicone implant. I’ve just recently had my first of 6 chemotherapy every 3 weeks apart, to then be followed by radiotherapy, 15 fractions, then onto Adjuvant antihormonal therapy with Letrozole 2.5mg (tablet) once daily for 7 years and Prostap 11.25mg 3 monthly (usually inhibits ovulation and stops menstruation) injections for 5 years. 
It has amazed me just how much cancer treatments have come along so much since my last diagnosis, it’s amazing. 

wishing everyone going through a similar thing all the love and hugs, having support is amazing and goes a long way to recovery. X

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    It sounds like you've had a very challenging year but thanks very much for taking the time to talk about it.

    The online community is divided into different support groups and I can see that you've already found and joined  the breast cancer group.

    When you feel ready you could copy and paste your post from here into a new post in that group. You can also join in with existing conversations by clicking on 'reply'.

    It would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Sending you much positivity and want to say thank you for sharing 

  • Hi there 

    You surely have been through it, I'm waiting for my mastectomy 17th Dec I can't wait because my breast is becoming painful but reading what you have put I can really relate too, I've started feeling dizzy and I can't focus on my phone or TV without feeling ill, I'm going to talk to my bc nurse see if they will put me through for a ct scan. 

    I hope you have a continued recovery xx

  • I have been through it, but I think everyone on these forums has. I hope your mastectomy goes well, it’s all the waiting that gets to us all isn’t it, as your feeling very anxious and want it over and done with so you can move to the next stage. I also had pain in my breast, like shooting pains before I got my operation in 2002. Yes any problems always speak to your bc nurse, they are amazing people. 
    sending positive thoughts to you, hope your recovery goes well and your able to enjoy Xmas with family. Xx