Hi All,
I am new to the site, diagnosed with Stage 4 lung cancer NSCLC Adenocarcinoma on 28th October, awaiting treatment which should start in the next two weeks. Having Chemotherapy and Immunotherapy, not sure what to expect or what my prognoses will be.
Hi Beefy1 and a very warm welcome to the Macmillan Community but sorry to hear about your diagnosis.
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot. (I have a completely different cancer).
This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated Lung Cancer Support Group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link below…….
……. and once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
Hi Beefy1,
I'm new to this group too,. I'm a carer for my husband who was recently diagnosed with lung cancer and a secondary in the brain. Yes stressful and challenging are how I would describe our experience so far. we've not had such a good service so far, although I'm aware that nurses and doctors in our area are so pressed for time. We've been given a lot of paper information in the form of the standard booklets, but each person is very different, very individual in their reactions. I would so like to help my husband, but really I'm not sure how to and despair of getting any help locally or face-to-face...... He's short of breath at times and very very tired. He has lost his appetite and probably has 'brain fog'.
He's a week on from having a third dose of chemotherapy. I'd really appreciate any tips that might help him be more comfortable. Has anyone any good ideas? Dassa
Hi Dassa and a warm welcome to you.
Can I suggest that you join and post in our…..
……. support groups.
As for the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from joining and posting in our……
……. support group where you will connect with a wide range of members navigating the exact same support challenges.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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