Hi all, in Oct 2020 i was admitted to hospital with what i thought was a flare up of my Gallbladder stones, i had been waiting 3 years to have gallbladder removed, but because of other medical problems it just wasnt safe for any op, anyway 6 hours after arriving at my local a&e, and numerous tests i was transfered to my local city hospital.
On my 60th birthday, Nov 3rd i was told by a doctor i had kidney cancer, i felt i had been hit with a cricket bat, i cried, and cried, we were in the middle of a pandemic, and i wasnt allowed visitors, i had to tell my partner and children over the phone, how heartbreaking was that.
The doctors decided that i would have the kidney removed on 6th January 2021, i was terrified, my kids were upset as they dropped me off at the hospital, i went down for my op at 10am, i was under anaesthetic for 8 hours, but the cancer was gone, or so they thought. During a scan 6 mths later they noticed small nodules on my right lung, they were very small so they said they would keep an eye on them with regular scans,
Advance to last year, April 6th, i finally had my gallbladder removed, all went well. During another routine ct scan the nodules on my right lung had grown and also some on my left lung, i was then sent to oncology, i started immunotherapy treatment, after 8 mths they stopped the treatment and in May this year i was put onto pallative care, i was told that without the new tablet they wanted me to go on id have 3 to 9 mths, with the tablet, possibly a year, im so scared, although i nursed my 2 yr old grandaughter through her cancer treatment until her death in 2017, and saw what she endured in her short life i am so frightened, i have so much i want to do, im getting married on the 22nd of this month after 36 years engagement, so my time is took up by this, but what when im bk to doing nothing and its on my mind day and night, i dont even know what kind of cance i have, some say its kidney cancer, some say lung cancer???
Hi Nettyd and a very warm welcome to the Macmillan Community but sorry to hear about your diagnosis.
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot. (I have a completely different cancer).
This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own posts in a few of our dedicated Support Group.
These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the links below…….
Living with incurable cancer - incurable patients only (Please join the group but for everyones safety this will then have to be approved by the Macmillan Community Team so will not happen immediately)
……. then once the group pages open you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
