Diagnosis

Hi im sorry to hear about your dad. I would suggest writing down all your questions and ask anything that comes into your head however silly you think it might be, I asked about every random thought that came into my head and still do now. You will probably find the consultant will answer some of them without you having to ask. Also if the consultant is happy record the meeting as there will probably be a lot of information to take in. Hope all goes well. Xx

Hi D3bz, and welcome, I'm so sorry to read about your dad, my diagnosis is similar to your dads, I am on the prostate cancer forum, which I think you should join too, it's by far the best place for you to get the information you need, best wishes Eddie

Hi 

Thank you for your thoughts I have a few and the taping of the conversation that I did think about to be honest .. just wondering of important questions I may have missed ..

Hope your OK now 

Thank you so much I will look for this ..  of you don't mind me asking  has your spras to multiple areas and what is your age .my dad is 77 so he old for all these different areas affected x

Hi I have a different cancer to your dad and I'm currently on week 4 of my treatment if all goes well I should be OK . I think important varies from person to person for me it was obviously prognosis, being female hair loss ( which I know isn't important in the big picture), would I get different/better treatment options if I was private, side affects long and short term of treatment, what happens if i did nothing and then like I say every random thought that came to mind some of which I think amused him but he humoured me and answered them all. Xx

It's a lot to take in isn't it ...  well I hope all goes well and thanky out for reaching out xx

Your welcome, i too have advanced prostate cancer, spread to 12 places, I am 59yo and have many other serious health conditions as well, the people on the prostate cancer are so knowledgeable and caring and will be happy to help you.

Eddie xx

Thank you and best wishes for your self .. x

Hello D3bz and welcome. Can I also suggest that you join the prostate cancer forum on this link.

 Prostate cancer forum 

Once there you need to press the black join bar and it will automatically link you in. We are a friendly bunch and can maybe help you more once you have joined and given us a little more information. Eddie has asked me to come over and say hi.

I am the wife whose husband is now 81 and was diagnosed with advanced advanced metastatic prostate cancer in July 2020 and he has had 3 recurrences so far so we are gradually working through the options. What is available or suitable will depend on what treatment he has already had plus his other health issues. If you have an hour then I would suggest you watch this video. It is American but it gives you an idea of the latest thinking on treating advanced prostate cancer with multiple spread but one thing to ask at the meeting is whether your dad might be eligible for either Triplet Therapy (a combination of ADT, ARPI and Docetaxel) or maybe a targeted therapy like Lutetium 177 with ARPI. There are some therapies which rely on having the correct genes so another question is whether your dad can have a genetic test.

https://youtu.be/-RVVq0uDAEE?si=RQcqOzssBIfC6b_J

We look forward to welcoming you on the prostate cancer forum where you can tell us how your meeting went.