Colorectal cancer treatment with lymph node involvement after surgery

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Hello everyone.

I was diagnosed with colorectal cancer in March. 

I went to theatre for a bowel resection the end of April, however they couldn’t do the surgery as my uterus was too heavy from fibroids to move out of the way. I then had 4 cycles of Capox whilst waiting the 3 months for the next surgery. Beginning of September I had a full hysterectomy, bowel resection and formation of a temporary ileostomy. 

My histology has come back showing that I have active cancer cells in 8 of the 35 nodes removed, including some blood vessel involvement and one that was away from my tumours. They found I had 2 tumours, one stage 3 and one stage 4 that had moved into my ovary. This has all been surgically removed and shows good clearance. 

The plan is now no more chemo, as my tumour had minimal or no response to the Capox, and I’ve been told no other treatment is available for this. So now I’m on 3 month bloods and 6 month CT scans. 

I’m struggling with the no treatment plan, and just waiting for it to pop up elsewhere. I am trying to find out if there are other options and how to get a second opinion, and where to request to be referred for my second opinion. 

Any advice would be very much appreciated. 

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    It sounds like you've had a long and difficult journey so I can understand you wanting to find others who have been on a similar path to you.

    As the online community is divided into different support groups I'm going to recommend that you join the bowel cancer group which is a great place to ask questions and share experiences with others who have a similar diagnosis to you.

    To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    It would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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