Newbie and scared!

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Hello everyone

found this forum online as I figured it would be really good to speak to people in similar situations. I have been having on going tests at the doctors due to mild swelling/water retention in my leg, it is always more prevalent in my right leg. So the doctor said they wanted to check a few things to make sure I had no blockages in my lymphatic system. I had a tumour marker test (think it was CEA blood test) this came back ever so slightly above the normal range, but the doctor did mention it could be because I smoke. She then said she wasn’t concerned and just to be completely safe she would send me for an internal pelvic scan and for me to do a FIT. Scan has come back fine however, the first FIT came back at 8.2, which I thought was ok. I then got a phone call 8 weeks later from my doctor asking me to do another one as 8.2 is slightly over the normal limit. I have had the results from the second FIT and that has come back as 82! So I have no been referred on the 2ww and I am terified.How can it change so much in 9 weeks! I did question whether it could be a typo as that seems very coincidental 8.2 -82. I have had no weight loss, no change in bowel habits and no continuous abdominal pain. I already suffer with horrendous health anxiety and have a horrible habit of catastophising. Please help I’m losing my mind. Thank you all Heart

  • Hi Gemma

    It's natural to be scared, we all were....try to stay off Dr Google as it only causes more worry...use only NHS/Macmillan accredited sites....ask your GP or CNS for support.

    click on the link below

    https://allcheckedup.co.uk/what-is-a-positive-bowel-cancer-screening-fit-test-result/

    Peter

  • Hi  and a very warm welcome to the Macmillan Community but sorry to hear about your ongoing diagnosis and the concerns you have.

    Navigating a diagnosis journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot.

    This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated Bowel Cancer Support Group.

    This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link below…….

            Bowel (colon and rectum) cancer

    ……. and once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

    You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • I found out I have stage 4 on Wednesday. I am so scared and frightened. X

  • Hi  sorry to hear about your diagnosis….. what type of cancer have you been diagnosed with?

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hi it's called cholangiocarcinoma. Didnt even show signs.They did ct as thought I had blood clot 

  • I am in a mdt meeting this week so just waiting game. . Cant stop crying 

  • Hi again  can I recommend that you look to join and put up a post in our dedicated……

             Bile duct cancer

    …… support group

    This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group please click on the link above and once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

    You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge