Hi there everyone I've been on a roller coaster since my surgery. The actual surgery is healing well, but the Rig has proved to be a real test. Hoping it is settling now.
I was really shocked how far back the infection I had in the Gastrostomy set me back. It's really knocked my confidence. Although I am slowly regaining the ground lost.
On Wednesday I am being scanned for my Mask, and then commence 6 weeks of Radiotherapy every day and simultaneously 1 day per week of chemo.
I am quaking in my boots about what it us going to be like. I am still producing far too much Saliva and this concerns me. The thought of lying flat out with all that excess fluid terrifies me to be honest.
I suppose my question is, am I worrying myself sick about something that I needn't? 1
I would also like to know more about the side effects. I have been nil.by mouth other than water and tea since surgery and am looking forward to progressing to solids. But will the treatment make that impossible, given the sore throat side effects?
It'd be great to get to know some people who are going through, or have been through something similar. I can drop the mask a bit then. It's tiring being so upbeat and positive for everyone else around me. I don't feel able to admit how scared I still am.
Looking forward to meeting and making new friends.
Hi Gentlefern and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
It's natural to be worried about your upcoming treatment but the nurses will take good care of you.
The online community is divided into different support groups and I can see you've already found and joined the head and neck cancer group which is a great place to ask questions and share experiences with others who have a similar diagnosis to you.
When you feel ready to post there, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
If you have any problems, just let me know.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
