Newbie saying hi

  • 4 replies
  • 36 subscribers
  • 217 views

Hi everyone 

just wanted to introduce myself….. I’m matty 

my partner was diagnosed with triple negative breast cancer and I’ve been trying hard to put her mind at ease but god damn its hard … I didn’t know anything about this cancer then I started reading about it literally minutes ago after the mrs sent me a link to one that isn’t what she has, so I thought I’d correct her but wanted a little bit of information before I got it all wrong and now I’m scared to even tell her she’s looking at the wrong type 

yeah I know it’s hard for her and she’s not handling it well but how the hell can I tell her that it’s not the ductile she’s been reading about 

  • Hi Matty72,

    welcome to macmillan, 

    I too have been diagnosed with TNBC. 

    Do not read Dr Google!! 
    Read sources like Macmillan for your information. 

    What is it that you would like to know about the cancer as I have done a bit of research myself when I got diagnosed to ‘clue’ myself up to what I was up against. 

    Are you reading about lobular or ducts? 
    Im unsure but I’m guessing and presuming that this means where it has ‘formed’ as opposed to the type of cancer. 
    I have got ductal. 

    I don’t think this part matters, it is more about the ‘triple negative’ part which is more important as that’s how the plan is formed. 

    However, honesty is the best policy… 

    Good luck in deciding

  • Hi  and a very warm welcome to the Macmillan Community but sorry to hear about your partners diagnosis. 

    A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type or support challenges will help you a lot…….

    This New to Community area is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms)……. I do see that you have already joined our supportive Breast cancer support group…… but you may also want to join our Triple negative breast cancer support group as well.

    These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.

    As for the practical and emotional challenges of supporting your partner and indeed yourself you may benefit from joining and posting in our……

             Carers only

    ……. support group where you will connect with a wide range of members navigating the exact same support challenges.

    To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.

    The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and support all the family.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hi missy tbh I’ve refrained from doing any research ….. that doesn’t mean I don’t care or not interested but I feel that everyone’s journey is different and even though it’s the same ride there’s many routes, everyone’s experience of treatment is unique and how they react to medication too 

    no offence to my mrs but we’re quite different….. she’s the type that will read the paperwork with tablets and suffer all the side effects whereas I’m a suck it and see type, admittedly I’ve not been diagnosed so feel like a bit of an outsider and yes I’ve had experience with cancers as I lost both parents (which pains me to say) but macmillan were fantastic for them even if I wasn’t 

    slightly ot I have my own physical and mental health problems so maybe it’s just my way of dealing or not dealing with things that could come across as cold but believe me I wouldn’t wish this thing on anyone…… (well maybe some) but certainly not people that don’t deserve it 

    as for which type WE have not been told yet only that it’s triple negative and (advised…. Typically she didn’t listen Rolling eyes) not to look it up by the consultant/surgeon 

    we’ve just had the mri done this week and see the consultant in a fortnight but when we first got an appointment for a pain in her breast was told that cancers are not painful then after the mammogram told that they had found a 7mm lump that they biopsy’d then another appointment up at guys but the letter sent to the gp states that a 2cm lesion was felt ……. WTH that’s 3 times larger in less than a month 

  • Hi matty72,

    I’m sorry to hear all the above about yourself and your parents. 

    Cancer is a - I can’t say it on here lol  

    Triple negative is the type of breast cancer. this is also what I have been diagnosed with. 

    treatment has come a long way with this type of cancer.

    Youre defo right - everyone’s journey is different but it’s nice to speak to others sometimes to get info or advice.  

    my original size of lump was measured at 3.6cm - ct scan 5 weeks later was measuring at 5.5cm.

    from what I have read, triple negative is a fast growing cancer but I would suggest not to get too hung up on the size.

    by having chemo first, it gives the chance for reduction in size. 

    I started chemo in June and hopefully finish in November.
    most people I have spoken too have had the same treatment as myself which looks like 12 weeks worth of weekly chemo, followed by 12 weeks worth of 3 weekly chemo. 
    Followed by surgery. 
    I am unsure about after as I am trying to do it in stages so I don’t get too overwhelmed. 

    after the first consultant appointment, things start to move quite quickly I found. 

    If there is anything, just ask on here and someone may know.

    I made the mistake of dr google! 

    Good luck with your journey