Following Radiotherapy for Prostate Cancer I now have a severely damaged bladder which has been constantly bleeding
for over a month. The Hospital says with this condition, Radiation Cystitis, it is not able to "cure" bleeding. My Hb level is being
monitored by my GP and I am having Transfusions when is drops below 95.
Does anyone have experience of a Urinary Diversion with a Urostomy?
Thank you for your help
Hi Kitt80 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm sorry to read that you've been left with radiation cystitis after treatment for prostate cancer.
The online community is divided into different support groups so I'm going to recommend that you join the prostate cancer group where you'll connect directly with others who may have had a similar experience,
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Kitt80
In addition to joining the prostate group, you may find it helpful to look into the following groups, where there are lots of members with experience of living with a urostomy.
I’ve had my urostomy for 4.5 years, and you can ask your question in these groups to connect with others who have also been through this.
Sarah xx
The bladder group in particular will have lots of experience of living with a urostomy, and this is the group you will be most likely to get replies from others. I’d suggest joining there and putting your post in that group.
Sarah xx
