Hi all,
I hope you are having as best a day as you can.
I am a dad to a beautiful, courageous 18 year old daughter.
4 years ago she was diagnosed with a grade 2 astrocytoma and to date has had 3 surgical resections.
We were told that follow up scans were showing no re growth but now in the most recent on their most certainly is!
She has now transitioned to adult services and we had a meeting with her new Neurosurgeon.
He took a lot of time to explain her situation and to point out that for the best outcome he needs her awake during surgery.
Despite his assurances that there will be no pain she is understandably freaked out at the thought.
He has also said that in his experience these tumours always come back which has hit us all a bit hard and we are in shock.
She has been driving a year and loves it! She is about half way through her advanced driving.Having to stop driving is going to be a real wrench.
She also has just got her first real job and their is a real worry that she will loose this.
That's it in a nutshell but I do have 2 questions.
Does she have to surrender her licence immediately? and when would be the best time to tell her work and how?
Hi Grey beard and a very warm welcome to the Macmillan Community but sorry to hear about your daughter.
A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type or support challenges will help you a lot……. I have a completely different type of cancer and treatment journey.
This New to Community area is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our…
……. support group.
This group is a safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your daughter and indeed yourself you may benefit from joining and posting in our……
Carers only (if you are their caregiver)
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Do get back to me if you need further help navigating the community.
