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I was recalled after a breast cancer screening where I was not expecting anything unusual. The biopsy diagnosis was solid papillary carcinoma and micropapillary DCIS. (Immunohistochemistry confirmed a clonal proliferation, diffusely ER positive, with surrounding myoepithelial cells in the areas of micropapillary DCIS, with rare myoepithelial cells in the area of solid papillary DCIS). I have had three lumpectomies, which all showed a margin of less than 1mm, and a mastectomy and a sentinel node biopsy (all on the same breast). Still waiting for results of the mastectomy & the one lymph node removed. The scans (mammograms & ultrasound done at the initial biopsy) have underestimated the extent of what is there. Micropapillary cancer is very rare.
Has anyone else come across this and, if so, what type of scans were given? Also was there another cancer involved (papillary in my case). Rare myoepithelial cells were also mentioned.
I am interested in whether it was only the solid papillary carcinoma that showed up on the initial screening mammogram & the mammograms taken at the recall, or whether they could also see the micropapillary bit (even if they did not know that it was micropapillary at that stage). I would like them to compare these scans to what the end result shows after the mastectomy, but it looks as if they will not be doing that. I am worried that if I have/get micropapillary cancer in the other breast, or anywhere else in my body, that it will not show up on a mammogram/scans. It looks as if they would not do a mastectomy on the other breast unless they were sure that there was cancer there.
Hi MargaretAB and a very warm welcome to the Macmillan Community.
Navigating this journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated Breast Cancer support group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link below…….
……. and once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.
Do get back to me if you need further help navigating the community.
