Hi my husband has mds blood cancer and he’s having a stem cell transplant in a few weeks. Up until now I’ve been ok but now the stress and worry has gotten on top of me. I’ve just been signed off work for a month. Any advice on how to cope please x
Hi LH2 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
It's perfectly natural to feel stressed in your situation so please don't beat yourself up about it.
As the online community is divided into different support forums I'm going to recommend that you join the carers only forum which is a safe and supportive place to talk to others who have a loved one dealing with cancer.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
If you want to talk to others who have MDS, then the MDS & MPN forum would be a good place to start. There is also a stem cell transplants for blood cancer forum.
It would be great if you could put something about your husband's diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi LH2 and a second welcome from me.
I am Mike and I help out around our various blood cancer support groups and as my friend latchbrook has highlighted we do have a dedicated Stem Cell Transplant group.
I have had 2 Allo (donor) Stem Cell Transplant's (SCt) for my two types of rare Lymphoma. In 19 days time it will be the 9th anniversary since my second Transplant…. my 9th re-birthday and yes, our 4 granddaughters do insist we have cake on this day.
I will keep an eye open for you on the SCT group.
Although SCT is a challenging process it is a tool that can make a significant difference.
I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma) ……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell - Not Otherwise Specified NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting.
SCT turned the tide to the point I have not required any treatment in 9 years.
There have been a few folks with MDS who have come through the Stem Cell Transplant support group who have had successfully SCTs
Hello everyone. Am new here and don’t know where to start. Just been diagnosed with Mantle Cell. Waiting for first hospital meeting next Tuesday. My life has imploded and I just feel like giving in
lready …….so confused and lost I am female and 57.
Hi BIDDYMOO you may want to join our dedicated.......
.....support group where you will conect with others on the same journey.
Hi again BIDDYMOO ..... sorry about that - this link should get you to the group > Mantel Cell Lymphoma
