Not really sure where to start. Hubby given 6mnths, that was 2 mnths ago. I look at him and think "no that cant be right surely?' He knows he has been given limited time but does not want to know how long the Oncologist has said. He was diagnosed with kidney cancer 13 years ago and had one removed, then 3 lung ops due to spread. 8 years ago diagnosed incurable and given 1-6 years. Immunotherapy was stopped just before last christmas as he was hosptalised with heart issues, caused by the treatment. At last appointment in July this year advised no further treatment to be offered as not beneficial, the week before was again hospitalised due to legs collapsing 3 times in 2 days. Luckily got quick appt with GP and was referred straight to A&E. I think its starting to hit me that this is getting very real, then i read stories of ppl living well past the time they have been given, and try to convince myself he will be one those ppl, but in reality no one can say
Hi JayM and a warm welcome to the Macmillan Community but so sorry to hear about your husband and the challenges you are facing.
A cancer journey like this in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help you a lot……. I have a completely different type of cancer and treatment journey.
This New to Community area is like our reception desk where we try to direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) and when it comes to the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from joining and posting in our……
Carers only (that I do see you have joined)
Supporting someone with incurable cancer
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community ((hugs))
