Immunotherapy

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I am due to start on a course of immunotherapy shortly. I have read the information leaflet and looked at various websites but if there’s anyone actually undergoing this treatment now, I should be grateful for any little words of advice about the whole process. Many thanks. Nando

  • Hi

    Do you know which immunotherapy drugs you'll be on?

  • Hi  and welcome to the Macmillan Community but so sorry to hear about your diagnosis.

    Navigating the cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.

    This New to Community area is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms)………… but you don’t say what type of cancer you have but if you care to have a look through THIS LIST you will find all our dedicated cancer support groups listed.

    These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from members who are navigating the exact same journey.

    Have a look through the LIST above and once you find the support group for your cancer type....... click on the link and when the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Yes. It says on my info sheet Opdualag 240 mg/80mg concentrate for infusion Nivolumab/Relatlimab. It’s mainly for melanoma which has gone onto my lung. I also have a different kidney cancer which I’m told isn’t too much of a problem!

  • Hi again  …… do join and put up a post in our dedicated…..

    Melanoma

    Lung, secondary cancer

    …… support groups.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hi  and a second welcome to the online community

    Do follow my friend Mike's suggestion to join us over in the melanoma group where you'll find a number of people on the combination of nivolumab and relatlimab (Opdualag). Joining the group will give you the chance to chat directly with others on this drug combination for melanoma.

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"