Hi, I have been diagnosed with VIN 3 of the vulva, and my course of treatment is a wide local excision, which includes a margin of healthy tissue, which includes my clitoris, I really want that not to be removed.
I called the hospital to speak about my options as I liked my consultant as he was nice, whereas I felt the surgeon was more matter of fact and gun-ho.
When I spoke to the nurse about a 2nd opinion, she told me the consultant would have the same opinion, and that he wasn't in until weds, and if I wanted a 2nd opinion then I should go back to my GP, so I sent them a message.
I've never been in this situation before, and I would like to try to make the correct decisions, and don't want to annoy anyone, but don't want to leave it until it's too late.
I think I will try again on weds to speak to the consultant, and also write it clearly on my form that I give consent to remove the lesion lump, but I would like to save my clitoris if at all possible, and just trying to salvage the best outcome as possible, and not alienate my surgeon but do the best in this situation, and would like anyone's advise and take on this please.
Hi Marnee and a very warm welcome to the Macmillan Community but I am sorry to hear about your concerns.
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated Vulva Cancer support group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link below…….
……. and once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.
Do get back to me if you need further help navigating the community.
