I'm new here, My partner was diagnosed with Glioblastoma only 8 weeks ago. Since then she has has a craniotomy and is about to start on Radio Therapy. Heck its like being on a water flume, only that's fun. I'm suddenly Carer, Cook, Cleaner, Chauffeur (she had to surrender her driving licence). We have got a cleaner to come in every fortnight to help. She's a Yorkshire lass and was always forthright, but now she is often mean. I get it that she is hurting and obviously its hitting her much worse than me, and of course she has lost her independence, but the mood changes are hard to take on top of all the extra work. I'm concerned what effect that the Radio Therapy will have on us.
Hi ST199 and a very warm welcome to the Macmillan Community but sorry to hear about your partners diagnosis.
A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type or support challenges will help you a lot……. I have a completely different type of cancer and treatment journey.
This New to Community area is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you join and post in our…
……. support group.
This group is a safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your partner and indeed yourself you may benefit from posting in our……
Supporting someone with incurable cancer
……. support groups that I see you have already joined…… these groups will connect you with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
The Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and support all the family.
Do get back to me if you need further help navigating the community.
