Hi, I was diagnosed with triple negative breast cancer in April, it was caught early and luckily completely removed in May. I have just started 6 cycles of chemotherapy, first infusion on Friday and i have been so poorly, didn't realise how bad it would be, i’m a single parent and my daughter who is 22 is on holidays, she didn't want to go, but its just for a week and not knowing how hard this would be i got what i thought would be all set up ready to do it alone but i have struggled enormously and have been feeling that i cant put myself through this another 5 times! It’s now day 5 after infusion and I am starting to feel a little better but very emotional. My symptoms have been very bad, I have felt like I’m on fire at times, very nauseous, acid, fatigue, very sore legs and even nightmares, every morning I awake feeling like I have been run over by a bus! anybody else’s experience similar, I feel that maybe my dosage was too high, I wore the cold cap and right now I don’t even care about my hair and would be happy to shave it all off! Looking for some advice on ways to cope better, any tips, anything! xx
Hi PixieT72 and a very warm welcome to the Community but I am sorry to hear about your journey so far.
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help you a lot. (I have a completely different cancer).
This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you join and put up your own post in our dedicated Breast Cancer support groups.
This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the links below…….
……. and when the group pages open you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post]or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community ((hugs))
