Hello, I am new to this forum. I picked up MMUM's comment about their son having SMART Syndrome. My son, who is now 45 was diagnosed with SS in 2022. He had a brain tumour in 2002 with consequent chemotherapy and radiotherapy. and he now has further complications. I would love to hear from anyone in a similar position.
Hi MACS and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm sorry to read that your son was diagnosed with a brain tumour in 2002 and is suffering from complications.
As the online community is divided into different support forums I'm going to recommend that you join the brain tumour forum which is a great place to ask questions and share experiences with others who have a similar diagnosis to you.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your son's diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Maldevab4363d and a very warm welcome to the online community
I’m Anne, one of the Community Champions here on the Online Community, and I'm sorry to read that your partner is living with ovarian cancer which has spread to her brain.
The online community is divided into different support groups so I'm going to suggest that you join the ovarian cancer and secondary brain cancer groups as you'll then connect directly with others who have the same type of cancer as your partner.
You might also like to join the carers only group which would give you the chance of talking to others who have a loved one living with cancer.
To join any or all of these groups, just click on the links I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
You might also like to put something about your partner's diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
