Hi I'm new to the group. I was diagnosed with Ovarian Cancer June 20th. I have spatterings on my Peritoneum. But I've had CT scans on 16th June, inconclusive biopsy on Peritoneum on 11th July, Ascitic fluid drained then too. Biopsy on Omentum on 12th August results supposed to be back tomorrow. Up to date CT scans on Thursday.
They've said they don't know where the primary is so as yet I've no treatment plan in place. I was originally told it'd be chemo then hysterectomy. Now looks like it may be exploratory to see what's going on.
I'm petrified it's taking so long. Petrified they'll open me up & it'll spatter everywhere. Petrified that it's already spreading rapidly because of biopsies. Petrified that I won't be around for my 13yr old.
Hi PoppyRose and a very warm welcome to the Community but I am sorry to hear about your ongoing journey,
I have been on my cancer journey for over 25 years with my incurable cancer and yes the waiting is hard….. but sometimes this can’t be helped due to having all the information in place to allow a plan to be put together….. back in my early days (1999) it took over a year and 6 biopsies to actually identify my very rare type of blood cancer
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help you a lot.
This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms)……. but I do see that you have already joined our dedicated Ovarian Cancer support group.
This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link below…….
……. and when the group page opens you can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post]or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community ((hugs))
