I am interested if anyone who has this type of lymphoma has any symptoms that have been hard to explain, diagnose or treat. I have assorted twinges, pin pricks numbness and aches intermittently and randomly at multiple locations on my body including muscles and joints and especially all over my legs and feet.
Hi Bancrofts and a very warm welcome to the Community but I am sorry to hear about your MZL diagnosis.
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help you a lot. I have lived with and been treated for my type of Non Hodgkins Lymohoma (NHL) for over 25 years.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you join and put up a post in our dedicated NHL support group.
This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link below…….
……. and when the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post]or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
Do get back to me if you need further help navigating the community……. but I will keep an eye open for you in the NHL group.
