Hi I'm new to the community.
My husband had bowel cancer 16 years ago two years later liver cancer and had 60% of his liver removed we then had a few clear years apart from bowel problems.
Two years ago cea levels were rising, cancer was found in both lungs and pelvic area. Chemo last year caused two blockages resulting in a now redundant colostomy and illeostomy with intestinal failure. Chemo tablets were stopped two months ago as chemo progressing now back.in his liver and stomach.
He had a brain bleed last week and now has mets in his brain. He is the bravest man and never complains he actually keeps me going. Prognosis 6-12 months maybe less, that was the diagnosis before the brain mets. Just feeling very frightened for the future, exhausted and lonely although surrounded by family and very good friends.
Hi Lizanne and welcome to the Macmillan Community but so sorry to hear about your husband.
A cancer journey like this in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help you a lot.
This New to Community area is like our reception desk where we try to direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) and when it comes to the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from joining and posting in our…
and our….
Supporting someone with incurable cancer
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [ Black - Click to Join - Banner ] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [ + Create new post] or [ + ] in the top right of the group page.
You can copy and paste the text from this post into your new post.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and support all the family.
Please do get back to me if you need further help navigating the community.
