Hello, I've been reading for a few weeks now, and just want to thank everyone for sharing their experiences, it has helped me a lot.
Diagnosis of invasive lobular, grade 2, HER - ER pos PR pos on 18 July. Had got married on 13th!
Was initially really positive, think a state of shock, that turned to sadness then anger, back to sadness, now feeling slightly more positive. I've had the oncotype test. Was recommended because I'm young to have ILC according to the doc. No family history.
My experience very similar to others. But I'd found a lump to the right of my breast on the edge of the armpit. It seems to have bamboozled the docs, but I understand that's just ILC now and there's no definitive test. Still waiting on my second biopsy and ultrasound. Lump in arm 20mm on ultrasound. Mri with contrast showed another small lump, 6mm, but nothing in other breast. Radiologist said my lymphs appear normal on ultrasound, but that's a very crude test... Only way to know is when they remove some, which I'm sure will come!
I don't have children but was planning to start now married... I think that's been the thing I've been most upset about, as I think this will definitely set those plans back, might even halt them altogether. Trying to keep positive, but it's so hard waiting for results. I realise this is the norm..
Thank you for reading x
Hi Katekatebobs and a very warm welcome to the Community but sorry to hear about your diagnoses.
I am pleased that you have found the community helpful. It is recognised that navigating the cancer journey can be a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer).
This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Breast Cancer support group. This will be a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link below…….
…… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page.
You can copy and paste the text from this post into your new post.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community ((hugs))
