New to the community

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Hi 

I have just joined, my husband was diagnosed with colorectal cancer with 4 liver tumours at diagnosis in 2015 with 35% chance is survival….had surgery and chemo then was clear for 1 year 2018

Then 2 more tumours were found in his liver so they removed  a third of his liver.

now 6 years later 2024 cancer has returned in the retroperitoneal lymph nodes and one in his lung. They can’t do biopsies or surgery as the lymph nodes are near the main artery. He has started chemotherapy again every other week as 48 hr infusion.

has anyone had similar? 

  • Hi  and a very warm welcome to the Macmillan Community but sorry to hear about your husband. 

    This is such a challenging and stressful time for you all but getting support from others who are dealing with the ‘exact same' cancer type or support challenges will help you a lot……. I have a completely different type of cancer and treatment journey.

    This New to Community area is like our reception desk where we try to direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you have a look at our……

             Bowel (colon and rectum) cancer

             Lung, secondary cancer

             Peritoneal cancer 

    ……. support groups. These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.

    As for the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from joining and posting in our……

             Carers only 

    ……. support group where you will connect with a wide range of members navigating the exact same support challenges.

    To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [ Black - Click to Join - Banner ] that appears at the bottom of the page and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [ + Create new post] or [ + ] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and support all the family.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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