Positive SLNB stage 3 melanoma

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Hi all my husband (37) noticed a mole had changed in January. Had that and two others removed in February (3 separate procedures all on his back). He then had a wle and slnb at the end of may and we have just been told the lymph node biopsy was positive (7mm). It has also broken the barrier of the node and entered the surrounding fa that was also removed.

He is now being referred to oncologist for treatment - likely immunotherapy. And also waiting for a full body scan. We are also still waiting for the follow up report and braf test results which will determine the treatment path. But we were told there will be a further 4 week wait until we get the oncologist appointment. Is this normal?

Given how aggressive the nodular melanoma seems to be (was given a metasis rate of 8) we are really concerned that it’s been growing and spreading since at least January and to wait another month seems a really long time. Keen to hear other experiences and if there is anything we can do to speed it up. We have private health care through work which we have not yet activated but does anyone know if that would speed things up at this point or would it just confuse things and potentially delay treatment? With two very young children at home this is obviously a very worrying time for us all so grateful for any advice. Many thanks in advance.

  • Hi  and a very warm welcome to the Macmillan Community but sorry to hear about your husband’s diagnosis. 

    A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type or support challenges will help you a lot……. I have a completely different type of cancer and treatment journey and this often results in different waiting times.

    This New to Community area is like our reception desk where we try to direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you join and post in our……

             Melanoma

    ……. support group. This group is a safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.

    As for the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from joining and posting in our……

           Carers only

    ……. support group where you will connect with a wide range of members navigating the exact same support challenges.

    To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [ + Create new post] or [ + ] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.

    You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    We also have our Ask an Expert section but do allow 3 working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and support all the family.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hi, I was given my nodular melanoma diagnosis on the nhs and then decided to go private and yes it did speed things up. Im on immunotherapy and I’m sure I would be receiving the exact same treatment on the nhs but for scans and results private does seem a lot faster.

    Hoping all goes well for your husband and feel free to ask me any questions.