Hodgkins lymphoma

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Hi ive just joined the site, my 10yr old has been recently been diagnosed with stage 4 hodgkins lymphoma and starts his treatment in a few days. He has almost completely lost his appetite and has lost a lot of weight very quickly. he is very skinny and it is very worrying.Is loss of appetite normal?

  • Hi  and a very warm welcome to the Community but sorry to hear about your son.

    I am Mike and I help out around our various Lymphoma groups. I don’t haveHodgkin's Lymphoma but I was diagnosed way back in 1999 at 43 with a very rare, incurable but treatable type of CTCL - NHL Low-grade non-Hodgkin lymphoma……. eventually reaching Stage 4a in late 2013 when a second, also rare type of aggressive PTCL - NOS NHL was then presenting so although my Lymphoma ‘type’ is different I do appreciate the challenges of this journey rather well.

    Loss of appetite often happens but often nce treatment starts including ant steroids thus would help.

    Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot.

    This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Hodgkin’s Lymphoma support group. This will be a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group please click on the link below…….

            Hodgkin lymphoma

    …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    I will keep an eye open for you in the HL group and we can help you further as you prepare to navigate the treatment world.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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