Hi all I’ve just been diagnosed by GP with polycythemia and sent urgent referral to haematology at royal Liverpool hospital. It’s been a whirlwind week since being told and was just wondering if anyone can chat about their first appointment and to give me an idea of what to expect on the day etc? Thanks in advance
Hi Chosen1 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm sorry to read that you've recently been diagnosed with polycythemia and it's natural to wonder what might happen at your appointment.
As the online community is divided into different support forums I'm going to recommend that you join the MDS & MPN forum, as this also includes polycythemia, where you can then connect directly with others who have the same diagnosis.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
