Hi, i was diagnosed in nov 2023 , started my chemo ABVD for 6 cycles in january 2024, thursday 27th june this week i will be having my last dose of Chemo! My pet scan showed that after 2 cycles i was in remission. Im so scared moving forward without chemo, altho it makes you unwell and causes lots of side effects, i feel like its keeping me safe from having cancer. I struggle with anxiety and my anxiety was so big at the diagnosis stage i delayed a sugery for 6 weeks, i cant believe i did that. I feel proud of myself for the first time in my life that ive been able to complete this awful treatment, ive struggled mostly alone day and night because all my family are at work and i wont trouble anyone. The nights are so long when your poorly and alone with your thoughts. My emotions are running high this week as i know my treatment is over. Its so surreal i cant believe what has happened to me in the past 6 months.
Hi Juzme and a very warm welcome to the Community but sorry to hear about your journey.
I am Mike and I help out around our various Lymphoma groups. I don’t have Hodgkin's Lymphoma but I was diagnosed way back in 1999 at 43 with a very rare, incurable but treatable type of CTCL - NHL Low-grade non-Hodgkin lymphoma ……. eventually reaching Stage 4a in late 2013 when a second, also rare type of aggressive PTCL - NOS NHL was then presenting so although my Lymphoma ‘type’ is different I do appreciate the challenges of this journey rather well.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot.
This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Hodgkin’s Lymphoma support group. This will be a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link below…….
…… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page.
You can copy and paste the text from this post into your new post.
I will keep an eye open for you in the HL group and we can help you further as you prepare to navigate the post treatment world.
