Lung cancer

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After having an op 15 months ago to remove lung cancer, it has now come back. Currently it hasn’t spread

Immunotherapy has been suggested but am concerned about side effects. I would be interested to hear from members who have had, or are currently having immunotherapy.

Also, I am considering ‘doing nothing’, rather than any treatment.

  • Hi  and a very warm welcome to the Community but sorry to hear about your relapse.

    Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer but have had multiple relapses over my 25 years)

    This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Lung Cancer support group. This will be a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group please click on the link below……..

            Lung Cancer

    …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    We also have our Ask an Expert section but do allow 3 working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hi Helen I am so very sorry to read lung cancer has fought back. That must be devastating for you, My dad is waiting definitive biopsy VATS surgery of nodules in pleura to confirm lung cancer. He also has a pleural effusion which sample didn’t confirm cancer.  They can’t tell us they say until biopsy is done and results are back. Referral letter was sent 2 weeks ago and still haven’t heard about pre-op appointment yet. Can’t fit him in. On your question my auntie had immunotherapy and she was fine she was very ill on chemo though. I believe immunotherapy is manageable. Like all treatments there is always side effects and these can vary person to person. I would highly recommend you do something rather than nothing as eventually it will spread and lung cancer is one type of cancer that moves fast! My question to you is was your lung cancer confirmed by biopsy too before they did surgery to take out the tumour. Am I correct you were stage 1 /2 ? Best wishes to your immunotherapy treatment or whatever you decide . Helen x