Peritoneal malignancy surgery

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Hello,

I am new to this group, looking for someone who is going through the same as me or has already been through this.  

My appendix burst back on mothers day ( not the best mothers day I've had).  But I wasn't prepared for what was to come.  I was discharged from hospital about 4 days later.  Took 3/4 weeks to recover at home.  Then I thought my life was going to go back to normal..... who knew...

On Monday 8th April, I started a new job, all was going well, then Friday 12th April arrived, I get a phone call at 7am in the morning, from Lister Hospital, the bowel nurse, she tells me I have cancer...  Wow, that's one way of telling someone, What took so long to tell me, no-one said anything when I was discharged from the ward back in March, that something had been found.

So my journey starts my life start's spiraling...  I have a CT Scan on Friday 19th April, have bloods taken, the scan confirms not spread to my liver and lungs..

Then have a colonoscopy on 27th April. Nothing in the back Bowel.  Then I get a phone call from a nurse down in the Hampshire and Basingstoke clinic, arranging appointment with the consultant.

So I am just unlucky I get told, who knew the appendix carried cancer, I certainly didn't think of it...  So on the 9th July I will be going in to have a 5 hour surgery, then spend a couple of day's in ICU with a NG Feed tube, Stoma and Catheter.  The whole thing scares the life out of me.  

I was hoping that someone could give me some advice what to expect what is going to happen after.  How long the recovery is?  Are you still being treated or has the cancer gone?  How did you cope?  I am scared if and when I get through this, will I ever be the same again, this whole process the more I read the more scared I am.

Thank you for reading.x 

  • Hi  and a very warm welcome to the Community but sorry to hear about your diagnoses and your journey so far.

    Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer).

    This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Peritoneal support group. This will be a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group please click on the link below……..

           Peritoneal cancer 

           Ileostomy, colostomy and stoma  support 

    …… then once the group pages open click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow 3 working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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