Bilateral mastectomy as part of breast cancer prevention

  • 1 reply
  • 36 subscribers
  • 107 views

Hi there, 

This year I made the decision to send off my family history notes to Womens Health to look into my risk at developing C in later years. 
It came back as high risk, and I was recommended getting yearly mammograms from the age of 40. 
However, the breast consultant at my local Hospital called me into their clinic, I assume after reading my records. So it turns out that I can have a bilateral mastectomy and prevent my chances by up to 90%. I was a bit shocked initially but having thought about it now for a week, it’s something I just need to do. I have a young family, this is important, despite the fear of surgery and recovery. I would also reduce the daily struggle of anxiety. 
However, the waiting list is well over 3 years. Now I know I am at risk I am wanting to explore all my options. One of which is, could I address this earlier? Can I go down the private route? What are the costs? What clinic? What consultant? 
I just don’t know where to start, I don’t know anyone having gone through this before… any advice would be much appreciated. Thank you 

  • Hi  and a very warm welcome to the Community but sorry to hear about the decisions you have been making.

    Navigating this journey can be such a stressful and challenging time but getting support from people who may have walked the ‘exact same' journey can help a lot.

    This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Breast Cancer support group. This will be a safe place to talk to others with a similar experience, to ask questions and get support.

    To connect in with the group please click on the link belowPoint down

    Breast cancer

    …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support or just a listening ear.

    We also have our Ask an Expert section but do allow 3 working days for a reply.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge