PV at 33

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So I've been diagnosed on the 3rd April with PV, I've started daily aspirin and venesections every 2 weeks. 

My head is all over the place, I have 2 young children and I'm just sad Sob  

I was also diagnosed with an unrelated benign brain tumor in march so the last few months have been rocky, and my mental health is everywhere. 

I need people that will understand me, I feel like a fraud because when I think of cancer I think of my nan dying and when I look at myself, I have cancer it terrifies me and makes me feel like a fake because I'm trying to get on with life for my kids but feel like I'm hitting a wall!! 

I lost my job 2 weeks ago, it was a very toxic environment and my boss decided it was time to let me go and focus on myself and my health, I think it was die to the amount of time I was having off becauPensivese I'm so depressed Pensive so now I feel like I'm a burden to my partner because my money is no longer coming in and he's having to foot the bill and work his bum off to ensure we have enough money! But who will hire me now, a 33 year old with blood cancer a brain tumor and 2 young kids! I wouldn't hire me! 

Help! 

  • Hi  and a very warm welcome to the Community but sorry to hear about your PV diagnoses.

    Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot.

    I have lived with and been treated for a different rare type of blood cancer for over 25 years…… so there is lots of Hope out there.

    The New to Community is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated  Polycythaemia Vera support group. This will be a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group please click on the link belowPoint down

    MDS/MPN/ET/PV/myelofibrosis (MF)

    …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow 3 working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thank you I will pop over there. Slight smile