Tongue cancer

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Hi all, I’m new to this group and I would like some help and advice from anyone who has had their tongue cancer return. I originally had surgery for stage 1 tongue cancer in December 2022 and the cancer returned in April 2024. I’ve since had another operation in almost the same place which I have been told the results were only a 3mm margin and they need over 5mm. I can’t believe that 3 weeks later I’ve been told I need another operation and radiotherapy. Has anyone else had similar problems? Thanks Sue

  • Hi  and a very warm welcome to the Community but sorry to hear about your challenges.

    The New to Community is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Head and Neck cancer support group. This will be a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group please click on the link belowPoint down

    Head and neck cancer

    …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thanks Mike, I’ll give that a try!