I have incurable stage 4 lung cancer started from primary hpv negative tonsil cancer spreading onto my neck lymphs and Thorax

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Just thought I would join and see what's out there

  • Hi  and a very warm welcome to the Community but sorry to hear about the journey you are on

    Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer although my cancer is also incurable).

    The New to Community is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms) .….. but zi do see that you have joined a few of our dedicated support groups. These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group please click on the link below Point down

    Head and neck cancer

    Lymph nodes, secondary cancer

    …… then once the group page opens you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page.

    You may also find it helpful to join and post in our dedicated…

    Living with incurable cancer - incurable patients only (Please join the group but for everyones safety this will then have to be approved by the Macmillan Community Team so will not happen immediately)

    …… as you will connect with other who are living with an incurable diagnosis.

    You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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