Terrified 2 week referal for suspected sarcoma

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Hi, 

I've never posted on here and just looking for someone to listen as I'm currently spiralling. I have really bad health anxiety and this has sent me over the edge. 

2 weeks ago I visited my gp with a lump on my upper arm. You can only see or feel it when I pull my arm back and tense the muscle. I found it accidentally in the shower. 

She thought it was from an injury so told me to come back in 2 weeks. I went to the follow up appointment and nothing had changed so I was referred for an urgent ultrasound. I was really lucky and magaed to get one the same day. I asked the technician if he could tell me anything (crying at this point) and he said it could he fat attached to the muscle but he couldn't say and also couldn't rule out cancer. 

I went away feeling a lttle better but then got the report on my app. It says it's just under 2cm, no internal vascular flow, appearances suggest a subfascial lipoma but given it's deep location a specialist referal may be appropriate. 

The doctor then rang and said she would be doing an urgent 2 week referal. She said it was just to cover all bases and hopefully it is only a lipoma. She also said she hasn't seen any lipomas that deep. She seemed worried. 

I got the referal through on the app the morning and seeing suspected sarcoma in black and white was really hard. 

I've done the worst and googled and got myself in a complete state. I have little kids and I'm terrified of leaving them. Like I said before I have health anxiety and also ocd so I'm really struggling and just need a bit of support.

Has anyone else been through similar? Also I've tried to look online but is no internal vascular flow a good thing or bad? Has anyone else had a deep lipoma? I also have some elbow pain a little bit below the lump. 

Thanks. 

  • Sorry just to add. I've looked at the referal again and they have ticked the box that says ultrasound findings are suggestive of sarcoma. I hoped it would be that they are unsure so they obviously think it isn't a lipoma or is this to get it through quicker? Sorry I'm really terrified.

    Thanks. 

  • Hi  and a very warm welcome to the Community but sorry to hear about your ongoing concerns..

    Navigating a diagnosis journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer but it’s good that you are being well looked after and you will get answers sooner)

    The New to Community is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Sarcoma support group. This will be a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group please click on the link belowPoint down

    Soft tissue sarcomas

    …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support or just a listening ear.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.

    Do get back to me if you need further help navigating the community ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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