New and waiting

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I'm new and only just slowly joining things because it's been a emotional rollercoaster. That I have really struggled. 

I have amazing network of friends, family around me and my partner who had been amazing. HOWEVER, I still feel alone in this journey and constantly thinking. I get messages from friends and even sometimes they are overwhelming too. 

I discover a pain and small lump in right breast on boxing day 2023, went to drs next day, had consultant.appt and scan, then they took 3 biopsies. Results.came.back after 3 weeks it was carcinoma but small and got early. 

I had surgery on 12th Feb, lumpectomy and 3 lymph nodes removed. Results again 4 weeks later and lumpectomy was successful with good clearance. However in the lypm nodes 2 of 3 were cancerous. 

I then had to have surgery on 26th March for full axillary nodes. Painfully recovered , had seroma as well then cording.....  Results were 5 weeks after one appt cancelled as was not back in time for appt. Last Friday I had appt and got news they had taken all my lymph nodes, 19 of them and 7 were cancerous. I do have a tiny lump appeared in armpit and consultant has checked and said wasn't worried. It could be like a scar tissue formed in healing. But said I need a CT scan now to check rest of body. 

The scan will tell us what it is when  done. 

Another 2 weeks at least wait for appt, and referral made for oncologist for chemo then radiotherapy along with hormone suppressed tablets. 

The wait is killing me to be honest... I'm so scared and trying so hard to keep positive. People find it easy to say keep strong keep positive but when I wake up every day its there the thought, the wait and thinking what is going to happen. Even the dr say you will be ok don't be scared but hard not too. 

I'm not working, doing thing at home now I'm 6 weeks post op I can do more,  even though underarm is not totally pain free. I still struggle and anxiety is the biggest problem for me. Affecting my life, relationships and just want to get on with treatment so I can get back to the happy place o found eventually after so long of unhappiness. 

I struggle to concentrate and thinking what do I need to do or must do...  

I have counselling booked, only had 1 and the next one is soon.

I'm planning and continuing healthy eating and drinking. 

Dreading chemo, my biggest fear was that I needed this and now I'm not sure I'm still processing it. I live alone and worried i won't cope. 

Sorry, long post but that felt good to get it out, I haven't hidden my diagnosis and honestly scared right now that the scan will bring more bad news ...... plus its the unknown...... 

  • Hi  and a very warm welcome to the Community but sorry to hear about your diagnoses and the challanges you are dealing with. Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer).

    The New to Community is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Breast Cancer support group. This will be a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group please click on the link below Point down

    Breast cancer

    …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow 3 working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.

    You could also look at the Macmillan Buddies service where you can be linked up with someone who has walked the same journey.

    Do get back to me if you need further help navigating the community ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • It's a pleasure to help and I can see that you have joined the BC group and put up a post - well done ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge