Mum has cancer

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Hi Everyone. My mum has been diagnosed with (matestes ) liver,lung,lymphnode, peritoneal cancer. It's just about everywhere. Can't eat. Just having Complan type drinks and picks at food. Lost lots of weight. Has osteoarthritis and knees are bad and were before this.

My two brothers live local and up to now have been doing all the caring for mum. One brother has put his back out  and can't help. The other is worn out. We are being referred for carers now to come in and get mum in and out of bed and to the loo. She doesn't want carers. Broke down today crying. Saying she doesn't want it arranged. 

I live miles away and have been staying over for the past few days to keep her company and help where I can. I also have had to do some work remotely at my mum's and my work  have been great about it. 

I am trying to say all the right things to mum but its hard when you are so close to it and she really needs proper care. I am worried she or my brother will hurt themselves as things are. It's so hard. 

  • Hi  and welcome to the Macmillan Community but so sorry to hear about your mum’s diagnosis.m abd the challenges the family are dealing with.

    A cancer diagnosis like this in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help you a lot.

    The New to Community is like our reception desk where we try to direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) and when it comes to the practical and emotional challenges of supporting your mum and indeed your family you may benefit from joining and posting in our 

    Carers only 

    Supporting someone with incurable cancer

    ……. support groups where you will connect with a wide range of members navigating the exact same support challenges.

    To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [ Black - Click to Join - Banner ] that appears at the bottom of the page and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [ + Create new post] or [ + ] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.

    You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    We also have our Ask an Expert section but do allow 3 working days for a reply.

    Please do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hello Bev1963 and a warm welcome from me i looked after my mum when she had terminal cancer and know how tough it is physically and especially emotionally for you and your family, I am glad you are looking for support, it is so important, In the morning phone your GP and ask for a referral to your local hospice and their palliative care team, Bev this does not mean your mum has little time left, the hospice and care team offer far more than somewhere to go at the end, They will support your mum, you and her family, managing any pain, making her as comfortable as they can so your mum can make the most of what time she has, and if your mum should need more intensive care she can be looked after at the hospice until she's well enough to come home and they can also access other services should your mum need them. best wishes to you and your mum

    Eddie xx

  • Thanks Eddie. We've had the referral to the Palliative team, hospice team and for some carers too. Just waiting as usual for  that to kick in. Help is on the way but mum doesnt want it bur we now have no choice. Thanks for your advice and support. Keep well. X

  • Your welcome Bev, i get support from my hospice and care team and they are amazing, I'm sure your mum will find this too. Bev don't forget to look after yourself as well, a little time every day to relax is so important, take care.

    Eddie xx

  • Thanks for all your advice.  I will sign up to some of the other forums. Bev

  • Please do this as you will connect with other who are dealing with the same challenges.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge