Hi All!
I've been on a very long journey. First started to feel sick and have pain about 4 years ago. My bloods have been abnormal the whole time and in September 2020 Haematology wrote to my GP confirming mild neutrophilia and monoclonal lymphocytosis and that should I develop B symptoms I should be referred back for a blood flow cytometry.
Fast forward to a few a week's ago when I was looking through some DSAR paperwork that I obtained in 2021 from my surgery. That's when I discovered this letter. I have had B symptoms all along and yet nothing had been done. I immediately called my surgery to be told that the letter wasn't on their system. All the GP could do was apologise and submit an urgent 2 week referral query CLL to Haematology. I'm now waiting for those results and there are still about 2 weeks to go.
I really don't know what to do with myself. Or my GP surgery for 'losing' the letter.
I'm basically here for some support at this anxious time. I have bipolar and ADHD, which really don't help my stress right now.
Hi ButterflyWine and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
It sounds like a very stressful time for you so I'm going to recommend that you join the leukaemia forum which is a great place to ask questions, share experiences and get support.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your tests to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
