Hi, I’m new to the forum and site.
My mum (84 years young) was taken to hospital with abdomen pain in December last year (first spotted last summer but with no diagnosis from the GP), and treated for possible appendicitis. The end of January she lost the sight in one eye due to a plaque particle. Then in early February the tummy pain got worse again. She was readmitted and subsequently had a pulmonary oedema and spent several days in ITU. The heart issue and stomach pain blended and the hospital didn’t know which was the priority. Her heart concern was cleared, besides her original AF, and they got back to the tummy issue.
After the above she got transferred to a further away hospital in March for an exploratory laparoscopy. That was when it all started getting even worse. She got given a ileostomy (stoma) and a diagosis of cancer. Then transferred back to our local hospital where the stoma was leaking from the edges. There was a hole in the bowel leaking into the skin, probably yet more bad luck, this time from the laparoscopy procedure. The output is like acid so was excruciating for her and was going into the skin inside. Then an emergency op locally this weekend was to resite the stoma, clear the mess up and then another 48 hours or so in intensive care. She has a VAC on the old stoma site to help healing and infection, and a new stoma called Polly (Percy stoma was a rightt 
). Today she’s moved back into the ward but still in chronic pain. Hopefully soon she will recover from the op - this second op was major surgery - and can start whatever treatment plan they have. But although they’ve not officially staged it, it’s advanced as it’s on her liver too, more small growths spotted in the open surgery last weekend. The primary seems to be bowel cancer, possibly small bowel (yet to be confirmed). It’s also in the peritoneum near the small bowel 1.5cm lump, the original spotted suspicious lump from CT scans.
I can’t believe she’s been in hospital for over two months….
I am an only child so everything falls on me. My dad passed away in 2021. Mum is a hero so far, and has taken much of what has happened in her stride. But I find it so hard seeing her in excruciating pain and having such continual bad luck. She has a morphine driver post op at the moment, and has also had two tap blocks for the pain in ITU. It’s made her very dopey the last couple of days.
Her MDT is hopefully tomorrow so we should know what the next step is once she has recovered from this recent surgery. I am married with older teens, and my mum lives a couple of minutes walk away. We run our own business, and I’m concerned how this will affect both time with mum and managing the workload. Mums father passed away with abdominal cancer so I am also fearful for hereditary risks for my family and myself I’ve yet to voice this with medical staff.
Thank you for reading, and letting me offload to you. I hope my menopausal waffling makes sense…
Hi Cammy72 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
It sounds like your poor mum has had a torrid time but hopefully once you both know what the treatment plan is you'll feel more in control.
The online community is divided into different support forums so I'm going to recommend that you join the bowel cancer forum which is a great place to ask questions, share experiences and get support.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your mum's diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
