Parent of 19 year old with rare cancer starting Larotrectinib (VITRAKI)

Hi PearlJamNo1Fan and a very warm welcome to the Macmillan Community but sorry to hear about your son's diagnosis. 

A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type or support challenges will help you a lot.

I see that you have already joined and put up a post in our dedicated Head and neck cancer support group. This group is a safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.

As for the practical and emotional challenges of supporting your (??????) and indeed yourself you may benefit from joining and posting in our Carers only support group where you will connect with a wide range of members navigating the exact same support challenges.

You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

We also have our Ask an Expert section but do allow 3 working days for a reply.

Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and support all the family.

Do get back to me if you need further help navigating the community.

Thank you Theighlander.  

We're not based in the UK but have access to good local servies thankfully.  This forum is a great resource to have.  

If you would like to get in touch from outside of the UK they can contact us 7 days a week 8am-8pm (UK time) on:

+44 207 0912230  email or live webchat

All the very best to your son and indeed yourself.