End of Life Care

Hi - interesting post!  Sounds like a  variant on the "living with cancer" approach.   There is a group on here called the "incurables" full of members whose cancer can't be cured.  Some are treatable (like me) but many are not receiving any treatment, or their treatment has stopped and they are on "watch-and-wait".   Come and join us there and re-post this and I guarantee you'll get a whole load of supportive replies, ideas, suggestions.  Oh we like to have a laugh too.  

Edit - forgot to add the link, doh!  Here it is  Living with incurable cancer forum - patients only  

Hi SzH and a second warm welcome to the Community but sorry to hear about your diagnoses.

The New to Community is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms)….. as Mmum has highlighted do join and post in our dedicated……

Living with incurable cancer - incurable patients only

(Please join the group but for everyones safety this will then have to be approved by the Macmillan Community Team so will not happen immediately)

…..  as this will be a safe place to talk to others with a similar diagnosis to ask questions and get support.

To connect with a group click on the “Bold Italic Link” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.

When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page and putting

You can copy and paste the text from this post into your new post.

You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow 3 working days for a reply.

Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.

Do get back to me if you need further help navigating the community ((hugs))