Hi I'm new to the forum glad to be part of the community
My husband has pancreatic net tumour no symptoms but hasn't been well for a while with his kidneys. He had scan which revealed the pancreas net tumour such a shock.
That was 12 months ago. He isn't fit for an operation so he is on hormone therapy laranatide. His first scan on the laranatide revealed stable and no spreading. On Thursday 4th April we go to liverpool royal hospital for the results of the second scan.this second scan revealed a blood clot on his lung no symptoms again, another shock. He's loosing weight because he isn't eating due to anxiety and fear. He won't leave the house and doesn't want me to either. We are in limbo, it's ground hog day. It's a 3 month waiting game. The doctor said it might not ever grow and you may die of something else. But if it starts growing down the line then it's a different thing.
Just wondering if anyone has had a net tumour start growing down the line and what would we be facing
Appreciate honesty
Peugeot _12
Hi Peugeot_12 and a very warm welcome to the Macmillan Community but sorry to hear about your husband’s diagnosis.
A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type or support challenges will help you a lot……. I have a completely different type of cancer and treatment journey.
The New to Community is like our reception desk where we try to direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated……
Neuroendocrine tumours (I do see you have joined)
…… support groups. These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from joining and posting in our……
Supporting someone with incurable cancer ( I do see you have joined)
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page and putting
You can copy and paste the text from this post into your new post.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow 3 working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and support all the family.
Do get back to me if you need further help navigating the community.
